Security.co.uk, 22 April 2014: 'Nationwide action for more control over patient records'

"A nationwide campaign was launched today by concerned citizens who want more control over their patient records. The campaign is an initiative of the Civil Rights Protection Foundation and Privacy First Foundation, which argue that current medical data sharing systems are insecure.

Indeed, there would be no hard limits on access to a person's medical records. When a patient gives permission to share his medical data, for example with the LSP (the former EHR), his data often becomes accessible to many healthcare providers. These can often access the medical record without prior review by the patient or his doctor.

"The consent given by the patient for these systems is generic, and does not restrict access to the medical record," the organisations said. These further argue that access to the medical record is set up in such a way that the doctor can no longer control who gets access to what data.

Website

Therefore, to regain control of the medical record with the doctor and patient, the website Specifically.co.uk launched. Through the website, people can send a letter of participation to their doctor, indicating the conditions that the exchange of their medical data must meet.

This allows doctors to call on their interest groups and ICT vendors to enable specific consent. With systems such as the LSP, this is currently not possible. As healthcare providers are legally responsible for medical confidentiality, the initiators expect healthcare providers to comply with the call in the letter."

Source: https://www.security.nl/posting/385215/Landelijke+actie+voor+meer+controle+over+pati%C3%ABntendossier, 22 April 2014.