Healthcare Vision, 25 April 2014: 'Nationwide campaign to preserve medical privacy'
“Patients should be able to decide together with their doctor exactly who gets access to their medical records. On the initiative of the Civil Rights Protection Foundation and the Privacy First Foundation, a group of citizens is launching a large-scale internet campaign for medical privacy on SpecificPermission.nl.
Current systems by which healthcare providers share medical data are unsafe because they do not set hard limits on access to a person's medical records, the initiators argue. When a patient gives permission to share their medical records, their data often becomes accessible to multiple healthcare providers. These can often access the medical record without prior review by the patient or his doctor.
The campaign argues 'specific consent' is a necessary condition for medical data exchange. This involves the doctor and the patient making proper agreements on data sharing. Specific consent is essential for ensuring trust in and accessibility of care, according to the campaign. Together, doctor and patient must be able to determine exactly which data can be viewed by whom. With systems such as the LSP, this is currently not possible.
Through the campaign's website, people can send a say letter to their doctor, indicating the conditions that the exchange of their medical data must meet. This allows doctors to call on their interest groups and ICT suppliers to enable specific consent. As healthcare providers are legally responsible for medical confidentiality, the initiators expect healthcare providers to comply with the call in the letter."